Living with Dementia

My wife Anna developed Alzheimer's in her early 50s. These are thoughts on what it was like day to day to live with dementia, for me and for her.

Tuesday, October 24, 2006

Anna is very agitated this morning and the trouble is, I don’t know what’s wrong. She has Jackie, the calmest person in the world. But Anna is angry, and for two hours now she has been crying out. I thought I had a clue, when she said something about ‘hospital’. I said that Jackie is not a nurse, that none of the ladies are from the hospital, and for a moment that seemed to calm her. She may have a pain of course, though she is not saying that. I go and sit with her, but it makes no difference.
I was hoping to write a work report today but Anna’s cries drive out thought. They crash around in my brain, like they are in the room breaking up my furniture, tearing up papers, throwing books off the shelves. I gave up thinking and tried to do some routine maintenance, updating the contacts on my computer, displacement activity, tidying up the mess, but even that became difficult.
‘Where’s Tim?’
I’m not sure I know.

1 Comments:

At 8:10 AM, Anonymous Anonymous said...

Charlotte writes:
Anna seems increasingly lost and confused, frightened and distressed. You show you are in touch with her dilemmas and can reassure her that she is in the right place-at home or her own bed, and she can take that in. She can also take in food when you feed her. Her confusion has been exacerbated by the changes of carers and reading this I think you feel that increasingly you are the one person that can understand her, touch her, hold her and help her by providing fleeting glimses of the world that she knew.
Reading this I feel a mounting struggle for you as you find you are also unable to think, to work, to go out and her health and safety feels precarious.
Should we also think about your health and safety being essential for your survival and about what you need in order to sustain yourself. (Maybe not a holiday in Poland but time away sometimes). When you feel lost and cut off is it difficult to seek help and know how to support for yourself as well as Anna? Maybe this is increasingly two different tasks? Can you sustain the hard work of making demands and asking for help from your friends and family?
I often feel I am on the peripery as I struggle to bear her disappearance and the profound fragility brought on by her illness and to support you both a little. Although I know my visits and contact with you both helps; walking away, and off into an 'ordinary life', feels like a betrayal and promotes guilt as you are being left to cope on your own. Does this describe something that you deal with all the time in relation to Anna?

 

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