Living with Dementia

My wife Anna developed Alzheimer's in her early 50s. These are thoughts on what it was like day to day to live with dementia, for me and for her.

Thursday, June 22, 2006

I am thinking how there is a tariff on experience.

There have been times that Anna and I are asked to consultation meetings about the development of services. We are not paid anything for that. Or we have taken part in the training of new staff – which attracts a small fee. In the same NHS trust I have consulted to the mental health in-patient service, and for that – I was now a professional not a carer – I was paid ten times as well.
By a strange coincidence, I have become aware of two initiatives by the same multi-national pharmaceutical company. In onc case, their agents have approached our local Alzheimers Society, wanting to interview people with dementia. They would pay £35 each and £25 to the local group as an introduction fee. (An introduction fee seems odd to me, unethical even, but perhaps it is usual?)
Second, a private sector consultancy has approached me as a kind of expert witness, to help on a project for the same company, looking at the future of health care (not just dementia care of course). And for that I may also be paid ten times as well.
It is far better to be an expert by reputation than an expert by experience, it seems.

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