Living with Dementia

My wife Anna developed Alzheimer's in her early 50s. These are thoughts on what it was like day to day to live with dementia, for me and for her.

Thursday, June 22, 2006

It is easy to see why I find some of the Buddhist ways of thinking are helpful. On Sunday I went on a retreat. It was father’s day, which is not specially relevant, but Dan stayed with Anna, so I could go and sit on my butt and also do walking meditation in a school grounds, and it seems they had quite a calming day too.
The teacher - Yanai Postelnik – made a distinction between reacting and responding to what is going on around you. His theme was, responding to the way things are. In my words, finding a way to accept without being passively fatalistic. Living with dementia needs to maintain that distinction, somehow.
Another thought: the pain is in our reaction, not the thing itself. I agree but that is difficult to practice. In a similar way, it is difficult, using psychoanalytic language, to take back projections. On denial he said: when we push away experience, we push ourselves away from experience.
One thing Yanai said got a laugh. If we are going nowhere, we might as well stop and enjoy it. This makes me think about quality of life questions and dementia. There are ways we have quite a good time – some of the time – though that means taking pleasure in simple things. Anna is calmer again, after a very difficult two weeks. And at times it is a pleasure to sit with her and experience her appreciation of having a drink or looking forward to seeing an old friend.
Her short term memory may be shot but she can still look forward.

0 Comments:

Post a Comment

<< Home