Living with Dementia

My wife Anna developed Alzheimer's in her early 50s. These are thoughts on what it was like day to day to live with dementia, for me and for her.

Monday, May 22, 2006

8.00 in the evening and Anna has gone to bed, Daisy with her, and I hoping she will sleep, as she is tired. The front door bell. I think it might be my son Dan, who was in a car accident yesterday. But it is one of those young men, unemployed, with a tray of cleaning materials for sale – our cupboards are bulging with them. I point at the notice on our front door –DOOR TO DOOR SALES? PLEASE DON’T RING.
‘Can you read, ‘ I say, for starters.
‘Yes, I can, sir, and can I explain, people sometimes move away …’
I interrupt. ‘The notice is for a reason. I am not just been unfriendly. I have an invalid here and I don’t want unnecessary calls.’
‘I didn’t know that …’
‘I’m telling you.’
‘ You’re not listening to me. The reason I rang is that people sometimes move away …
‘You’re not listening to me,’ I say.
‘Why are you shouting at me. Can’t you see it’s making me worse.’
‘I can,’ I say, and close the door.
‘Cunt,’ he says. ‘ I’ll send my friends round.’
Fortunately Anna has not woken up.
This is a meeting of different worlds – the angry disturbed young man, treading the streets, doing his best, I suppose, and the angry (disturbed?) old man, trying to protect his home as a sanctuary of a kind. I complain about social isolation but I still want to protect the boundary if I can. And it is strange to build a defensive wall with vulnerable people on both sides.

1 Comments:

At 8:54 PM, Blogger John said...

Your burden... is heavy.
I will pray for you.

I happen to have an mp3 of a presentation by a pastor and former college president. It's very touching, as it is his story of caring for his wife (who had early-onset alzheimers) for more than a decade. My email address is jclack@olivet.edu. If you would like it, shoot me a line.

 

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