Living with Dementia

My wife Anna developed Alzheimer's in her early 50s. These are thoughts on what it was like day to day to live with dementia, for me and for her.

Sunday, July 23, 2006

We have been going up and down the stairs all day. It take twenty to thirty minutes each time.

As I was going up the stair
I met a man who wasn’t there.

Sometimes Anna stops, and it is as if time itself has stopped. She goes into a reverie – while I wonder to myself if the plan to convert the local hospital for dementia day care has been subject also to some political reverie, or has just been forgotten over six years … This morning Daisy and I each took several alternate five minute shifts with Anna, as she stood still on the third step, until in the end I lifted her down – I didn’t like to do that, what if I was not there to help?

This afternoon we encouraged each other: ‘Yes?’ ‘Yes’ ‘Yes’ ‘Yes’ ‘Yes!’ ‘Yes??’ ‘Ye-’ ‘Yes!’ ‘Yes …’ about a hundred times in succession. We are like very incompetent actors rehearsing an orgasm.

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